Pulmonary Hypertension Unit

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Links

PHA Associations:

The following is a comprehensive list of pulmonary hypertension patient associations from around the world:

PHA Europe (e-mail only)
info@phaeurope.org

PHA International
Pulmonary Hypertension Association (PHA) acts as a hub for international PAH work.  The mission of the PHA is to find ways to prevent and cure pulmonary hypertension, and to provide hope for the pulmonary hypertension community through support, education, advocacy and awareness.
http://www.PHAssociation.org/intl

Argentina (e-mail only)
PHA Argentina
mdiez@ffavaloro.org

Austria
PHA Austria
http://www.phaaustria.org

Australia
PHA Australia
http://www.phaaustralia.com.au

North South Wales Support Group (e-mail only)
jenniferlouisehodges@hotmail.com

Belgium
PH vzw Belgium
www.ph-vzw.be

Brazil
Associacao Brasileira de Amigos e Familiares de Portadores de Hipertensao Arterial Pulmonar (ABRAF)
www.respirareviver.org.br

Canada
Pulmonary Hypertension Association of Canada (PHA Canada)
www.phacanada.ca

Canada – Alberta
Calgary Pulmonary Hypertension Support Group (e-mail only)
sharonproudfoot@yahoo.com

Edmonton Pulmonary Hypertension Support Group (e-mail only)
havinfun667@hotmail.com

Canada – British Columbia
British Columbia Pulmonary Hypertension Society (BCPHS)
www.bcphs.org

University of British Columbia PH Society (UBCPHS) (e-mail only)
ania_2@hotmail.com

Canada – Manitoba
The Manitoba Pulmonary Hypertension Support Group
http://ca.geocities.com/mb_ph_group/

Canada – Ontario (e-mail only)
The Pulmonary Hypertension Society of Ontario
phs@mnsi.net

Canada – Quebec
PPH Quebec Support Group
http://groups.msn.com/PPHQuebec

China
PHA – China
www.phachina.com

Columbia
Fundación Colombiana de Hipertension Pulmonar
www.hipertension-pulmonar.org

Czech Republic
Sdruzeni Pacientu s Plicni Hypertenszi
www.pph.cz

France
HTAP (HyperTension Artérielle Pulmonaire) – France
http://www.htapfrance.com

Germany
Pulmonal hypertonie e.v. – Germany
http://www.phev.de/

Greece
PHA Greece (e-mail only)
giannoulis_phagr@yahoo.gr

Ireland
Pulmonary Hypertension Association – Ireland
http://www.pulmonaryhypertension.ie/pha-ireland/

Israel
PH Israel (Pulmonary Hypertension Israel)
www.phassociation.org/intl/Israel

Italy
AMIP (Associazione Malati Ipertensione Polmonare) – Rome
www.assoamip.net/

AIPI (Associazione Ipertensione Polmonare Italiana) – Milan
www.aipiitalia.org/

Japan
PHA – Japan
http://www.pha-japan.ne.jp/

Latin America (US reg.)
La Sociedad Latina de Hipertension Pulmonar
http://www.sociedadlatinahp.org/

Mexico
AMHAP (Asociacion Mexicana de Hipertension Arterial Pulmonar) – Mexico
http://hapmx.ods.org

The Netherlands
PHA – Nederland
www.pha-nl.com

Norway
PHA Norway
www.pha-no.com

Peru (e-mail only)
Asociación Peruana de Hipertension Pulmonar
marielatc@terra.com.pe

Romania
Pulmonary Hypertension Association Romania
www.htap.ro

Singapore
Singapore PH Support Group (e-mail only)
smamub@yahoo.com.sg

South Africa
Pulmonary Hypertension Association South Africa
www.phsa.co.za

Southeast Asia
PHA SEA (e-mail only)
smamub@yahoo.com.sg

Spain
Asociación Nacional de Hipertension Pulmonar
www.hipertensionpulmonar.es

Sweden
Hjärt- och Lungsjukas Riksförbund
www.hjart-lung.se

Reumatikerförbundet
www.reumatikerforbundet.se

Switzerland
HTAP Revivre
www.saph.ch/SuisseRomande

Taiwan
Taiwan Foundation for Rare Disorders (TFRD)
www.tfrd.org.tw

Turkey
PHA Turkey
www.PHA-Turkey.com

UK
Pulmonary Hypertension Association UK
http://www.phassociation.uk.com

US
The Pulmonary Hypertension Association (PHA) (USA)
http://phassociation.org/

Pulmonary Hypertension: The Complete Resource (USA)
http://phcentral.org

Scleroderma Foundation USA
http://www.scleroderma.org

International Scleroderma Network (USA)
http://www.sclero.org

 

Supportive Therapies:

 

Some of our patients avail of the services of supportive therapies such as acupuncture and the NPHU has had an association for several years with Gerry Rothwell, a practitioner of Traditional Chinese Medicine. Read about Gerry’s work on his website.