The Winter 2020 edition of PHéileacán is available here. Full of information for PH sufferers and their families the contents include: Progress with developments in PH Introducing the PAHTool Update on Research – Managing breathlessness during physical activity Looking forward to better times – Holidays and PH Learning to Live with COVID Fundraising events Life […]
For advice on all issues related to Corona Virus please visit the HSE dedicated webpages at this link. https://www2.hse.ie/conditions/coronavirus/coronavirus.html
Staff from the Pulmonary Hyperptension Association were most grateful to accept a cheque for €9203.07 from Mr Eddie Mullins, Governor of Mountjoy Prison. This money was raised by the prison staff when they organised a static cycle outside the Mater Hospital last September. Everybody wore the ‘Get Breathless for PH’ t-shirts. It was a memorable […]
PHA UK have released the results of their survey – , an assessment of the impact of the pandemic on the pH community in the UK. You can see the report at this link: ‘Shielded Voices – Lived experiences during the early stages of the Covid-19 Pandemic’
This year we will be celebrating World PH Day on the 5th May in the midst of the Covid-19 pandemic and as with all our normal lives this will curtail our ability to organise events to mark this important day. PHA Ireland has concentrated its major awareness and funding efforts to late summer, early Autumn […]
Rare Diseases Ireland CEO Vicky McGrath has issued the following statement on coronavirus and the importance of cocooning: “As the impact of coronavirus continues to take its toll on daily life in Ireland, we are continuing our work at RDI to ensure that the needs of the community are met. Yesterday we issued a statement […]
Rare Diseases Ireland’s CEO Vicky McGrath has issued a statement regarding Coronavirus (COVID-19) and the challenges for the rare disease community in Ireland. Download it at this link.