Pulmonary Hypertension Unit
-- Featured News --
PHA UK Magazine emphasis
Over the years PHA Ireland has been supported by our colleagues across the water in PHA UK, the charity for UK pulmonary hypertension sufferers. We have shared forums in Ireland, the UK and Europe with the PHA UK team and where possible coordinated our efforts in support of PH awareness and patient support and foresee […]
Read Full Article8th Nov 23
PH consultants take to the pedals for patients
Update: This event is now complete and we want to congratulate Prof. Gaine, Dr. McCullagh and their UK colleagues on their endurance cycle battling fatigue and the elements to make it through to the finishing line at the Mater Hospital 3 days and 400Km on from their departure from Sheffield. We particularly want to offer […]
Read Full Article22nd Sep 23
PHA Ireland 2023 AGM Report
The AGM of the Pulmonary Hypertension Association – Ireland took place in Crowne Plaza Hotel, Blanchardstown on Saturday April 22nd. The event was very well attended with over 75 people present. The overall event was sponsored by Janssen Pharmaceuticals. Following introductory remarks by Martin Breen, the first session was a Q&A session between Prof. Sean […]
Read Full Article4th May 23
Pulmonary Hypertension Rehabilitation Programme
To coincide with Pulmonary Hypertension Awareness Week 2021, PHA Ireland are delighted to introduce a bespoke Pulmonary Hypertension (exercise) rehabilitation programme. Devised specifically for Pulmonary Hypertension patients by Ciara McCormack, an expert clinical exercise physiologist, it aims to provide PH patients with an opportunity to engage in some light exercises within their own home to […]
Read Full Article29th Oct 21
World PH Day 2023
On this Friday, May 5th, people around the world will participate in World PH (Pulmonary Hypertension) Day to raise awareness of this frequently misdiagnosed disease, advocate for access to PH diagnosis, treatment and care and celebrate the lives of those living with PH. Our thoughts are with our members, their families, friends & carers who […]
Read Full Article3rd May 23
PHull Bull Tri – in action
This striking video captures the effort and endurance exerted in the PHull Bull Tri at Bull Island on Sunday 19th September to highlight the normal physical endurance that Pulmonary Hypertension so cruelly steals from those who suffer from this debilitating disease. Patrick Corkery, past sufferer from PH & an English Channel swimmer joined with the […]
Read Full Article24th Sep 21
PHéileacán Newsletter Winter 2020
The Winter 2020 edition of PHéileacán is available here. Full of information for PH sufferers and their families the contents include: Progress with developments in PH Introducing the PAHTool Update on Research – Managing breathlessness during physical activity Looking forward to better times – Holidays and PH Learning to Live with COVID Fundraising events Life […]
Read Full Article23rd Dec 20
Irish Water Staff 5K Run
We’d like to offer a massive thank you to the staff of Irish Water who took the opportunity of a 5K run in Fairview Park to support PH Awareness in a particularly timely fashion given it was PH Awareness Week (22nd to 28th October). You can see from the attached photos they addressed the run […]
Read Full Article28th Oct 18
Gunboat Diplomacy in support of PH Awareness 2017
This week it’s time to bring the big gun(s) out in support of Pulmonary Hypertension Awareness and the Association. The 40th Potential NCOs’ class of the Irish Naval Service are preparing for the next phase of their career patrolling and protecting our shoreline, mounting search and rescue at home and abroad and many other humanitarian and operational […]
Read Full Article18th Jul 17
-- Get Breathless for Pulmonary Hypertension --
PH consultants take to the pedals for patients
Update: This event is now complete and we want to congratulate Prof. Gaine, Dr. McCullagh and their UK colleagues on their endurance cycle battling fatigue and the elements to make it through to the finishing line at the Mater Hospital 3 days and 400Km on from their departure from Sheffield. We particularly want to offer […]
Read Full Article22nd Sep 23
PHull Bull Tri – in action
This striking video captures the effort and endurance exerted in the PHull Bull Tri at Bull Island on Sunday 19th September to highlight the normal physical endurance that Pulmonary Hypertension so cruelly steals from those who suffer from this debilitating disease. Patrick Corkery, past sufferer from PH & an English Channel swimmer joined with the […]
Read Full Article24th Sep 21
PHull Bull triathlon – Video
Please watch this video by Ciara McCormack, the Exercise Specialist in the National Pulmonary Hypertension Unit explaining our upcoming Fundraiser event for PHA Ireland on Sunday 19th of September. You can find out more detail on our website here. If you wish to support us you can donate here:
Read Full Article1st Sep 21
PHull Bull triathlon
The Pulmonary Hypertension Association Ireland invite you and your family to take part in the PHull Bull triathlon on September 19th 2021. We plan to swim (10km), run (10km) & cycle (30km) around bull island on Sunday 19th of September 2021 to raise awareness of pulmonary hypertension (PH) and fundraise for the Pulmonary Hypertension Association […]
Read Full Article8th Aug 21
Mountjoy Staff Cheque Presentation
Staff from the Pulmonary Hyperptension Association were most grateful to accept a cheque for €9203.07 from Mr Eddie Mullins, Governor of Mountjoy Prison. This money was raised by the prison staff when they organised a static cycle outside the Mater Hospital last September. Everybody wore the ‘Get Breathless for PH’ t-shirts. It was a memorable […]
Read Full Article10th Feb 20
Prison Service Unlock support for PH
We are delighted and truly grateful for this fantastic day today outside the Mater Hospital when the Mountjoy Prison Staff strained their sinews, hearts and lungs in a static bike marathon to ‘Get Breathless for PH’ and PHA Ireland specifically. They were supported by other volunteers from the Mater Hospital staff, the Lord Mayor of […]
Read Full Article10th Sep 19
Mountjoy Staff Fundraiser for PHA Ireland – Update
PHA Ireland have issued the following Press release in advance of Monday’s (9th September) static cycle fundraiser in aid of PHA Ireland. After Breath taking match – the Dubs do it all again for Charity Most of us take breathing for granted. Persons living with Pulmonary Hypertension (PH) do not – for them breathing is […]
Read Full Article6th Sep 19
Mountjoy Prison Staff support PH Awareness
The Irish Prison Service’s vision is ‘A safer community through excellence in a prison service built on respect for human dignity’ with an associated set of values including Teamwork, Integrity, Potential, Safety & Support. Next Monday 9th September, staff from Mountjoy Prison are bringing this set of professional vision and values to bear in order […]
Read Full Article3rd Sep 19
Irish Water Cheque Presentation
We’d like to say a very big thank you to the staff of Irish Water who, as we previously reported, managed to collect €750 for PHA Ireland in a 5K run recently. We are very grateful for their generosity of time and effort. Pictured above is Regina Prenderville of PHA Ireland (centre) with Ciaran O […]
Read Full Article3rd Dec 18
Team Phenomenal Hope UK & Ireland
We want to offer our congratulations and gratitude to all who participated in the 3 day endurance cycle from Sheffield to London marking PH Awareness week (22nd to 28th October). PHA Ireland was ably represented by Prof. Sean Gaine (pictured 5th from left and inset) who joined UK colleagues from different medical disciplines related to […]
Read Full Article28th Oct 18
Irish Water Staff 5K Run
We’d like to offer a massive thank you to the staff of Irish Water who took the opportunity of a 5K run in Fairview Park to support PH Awareness in a particularly timely fashion given it was PH Awareness Week (22nd to 28th October). You can see from the attached photos they addressed the run […]
Read Full Article28th Oct 18
Tallaght Athletics Club support PHA Ireland
On a beautiful afternoon in Dublin – the Tallaght Athletics Club ran a 5K race in support of one of our patients – Kathy Rooney. Kathy was delighted to be able to participate in part of the walk. The event was covered extensively by the local radio / print media. This was a real fun […]
Read Full Article26th Oct 18
Cup Finalists Cobh Ramblers support PHA Ireland
It takes character, hard work, skill and preparation to win a semi-final as underdogs and make it to the first senior national cup final in a club’s history. This is just what Cobh Ramblers FC achieved on Monday afternoon against Dundalk at St. Colman’s Park. Perhaps what displays the team’s character so vividly is that […]
Read Full Article9th Aug 18
Gunboat Diplomacy in support of PH Awareness 2017
This week it’s time to bring the big gun(s) out in support of Pulmonary Hypertension Awareness and the Association. The 40th Potential NCOs’ class of the Irish Naval Service are preparing for the next phase of their career patrolling and protecting our shoreline, mounting search and rescue at home and abroad and many other humanitarian and operational […]
Read Full Article18th Jul 17
-- Patient Days --
Patient Meeting Dublin June 29th
A further patient meeting has been confirmed for Dublin on Thursday June 29th. Location: Crowne Plaza Hotel, Blanchardstown Time: 1130:1330 Tea/Coffee wil be served on arrival. Please advise if you are planning to attend by email to – martinbreen@mater.ie.
Read Full Article13th Jun 23
Patient Meeting Cork June 15th
The next patient meeting is on Thursday June 15th in Clayton Silversprings Hotel, Cork. 11:30 to 13:30. Tea/coffee will be provided on arrival. Please let me know if you are going to attend by email to – martinbreen@mater.ie. There will also be a meeting In Dublin in the coming weeks and final details are being […]
Read Full Article6th Jun 23
PHA Ireland 2023 AGM Report
The AGM of the Pulmonary Hypertension Association – Ireland took place in Crowne Plaza Hotel, Blanchardstown on Saturday April 22nd. The event was very well attended with over 75 people present. The overall event was sponsored by Janssen Pharmaceuticals. Following introductory remarks by Martin Breen, the first session was a Q&A session between Prof. Sean […]
Read Full Article4th May 23
Patients Support Group – Annual General Meeting 2023
Date: April 22nd, Saturday Location: Crowne Plaza Hotel, BlanchardstownTime: 10:15 – 15:00Registration is at 10:15 and there will be two breaks during the event, one for Tea/Coffee and one for lunch.The agenda is varied and will focus on issues pertinent to you.There is no cost for this event.Please bring a family member or supporter with […]
Read Full Article13th Apr 23
Patient Support Group Meeting Cancelled
Please note that the Patient Support Group Meeting scheduled for 12 noon on Wednesday 25th March in the Kilmore Hotel, Cavan has been postponed because of the Corona Virus social distancing measures.
Read Full Article19th Mar 20
Support Group Meetings 2020 – February & March
Please take note of the following dates for our next support group meetings: Wednesday 19th February – Dublin Meeting will be held in the Executive Board Room of the Crowne Plaza, Blanchardstown at 12 noon Wednesday 25th March – Cavan Meeting will be held in the Breffni Suite, Kilmore Hotel, Cavan Town at 12 noon
Read Full Article7th Feb 20
2019 AGM
PHA Ireland’s 2019 AGM will take place on Saturday, 7th September at the Crowne Plaza Hotel Blanchardstown, Dublin 15. As with previous years we are expecting a large turn out and the programme for the day includes a host of expert speakers with informative talks and interactive workshops. To register for the event you can […]
Read Full Article22nd Aug 19
Great Day at 2018 Patient and Family Annual Meeting
We want to thank all our fabulous guest speakers, group facilitators and of course our very important patient and family participants that made the 2018 Patient & Family support meeting such a success last Saturday 28th April at Crowne Plaza Dublin – Blanchardstown. We hope everybody who attended found it engaging, informative and supportive. Please […]
Read Full Article7th May 18
2018 Annual Patient and Family Meeting
The 2018 Annual Patient and Family Meeting will take place on Saturday April 28th at the Crowne Plaza Hotel, Blanchardstown commencing at 930am. We have a wide range of expert speakers and interactive workshops for participants. Please download the full programme at this link to find out how to register and the details of the […]
Read Full Article11th Apr 18
Minister attends 2017 Patient & Family Meeting
We are very grateful to Finian McGrath, Minister for Disability issues, for attending our 2017 Patients & Families meeting. Minister McGrath tweeted after the event “Great morning with Prof. Sean Gaine and @pha_ireland.. Fantastic people who need support”. In response the Association stated “PH Association so grateful to Minister McGrath for his compassion, honesty & […]
Read Full Article4th May 17
Dublin Support Group Meeting January 2017
The first Dublin Support Group Meeting of 2017 will be on Monday 23rd January at 11 am in the Crowne Plaza Hotel, Blanchardstown (this had initially been planned for 30th Jan).
Read Full Article10th Jan 17
-- Education & Awareness --
National Pulmonary Hypertension Study Day
The National Pulmonary Hypertension study day for doctors in training took place in the Mater Hospital on the 16th December 2021. Thank you to our Chair Dr. McCullagh and our wonderful speakers Professor Kiely, from Sheffield University Hospital and our own Professor Gaine. Congratulations to the National Pulmonary Hypertension medal recipient Dr. Luke Forde (pictured […]
Read Full Article20th Dec 21
PHéileacán Newsletter Winter 2020
The Winter 2020 edition of PHéileacán is available here. Full of information for PH sufferers and their families the contents include: Progress with developments in PH Introducing the PAHTool Update on Research – Managing breathlessness during physical activity Looking forward to better times – Holidays and PH Learning to Live with COVID Fundraising events Life […]
Read Full Article23rd Dec 20
World PH Day 5th May 2020
This year we will be celebrating World PH Day on the 5th May in the midst of the Covid-19 pandemic and as with all our normal lives this will curtail our ability to organise events to mark this important day. PHA Ireland has concentrated its major awareness and funding efforts to late summer, early Autumn […]
Read Full Article1st May 20
My life with pulmonary arterial hypertension: a patient perspective
Pisana Ferrari and Hall Skåra have co-authored an article for the European Heart Journal Supplements focusing on the patient perspective of living with PAH. Titled ‘My life with pulmonary arterial hypertension: a patient perspective’ you can read it at this link.
Read Full Article7th Jan 20
‘My heart is getting very tired – I need a transplant’
Karen Doherty, who has Pulmonary Hypertension for the last 14 years, shares her story with the Irish Independent’s Health & Wellbeing issue on the 24th June 2019. In a moving and compelling article Karen describes the enormous impact the disease has on the sufferer and her family and speaks about her future. The article can […]
Read Full Article24th Jun 19
14 Years Living with Pulmonary Hypertension
Compelling, emotional and thought provoking interview by Karen Doherty of PHA Ireland with Matt Cooper on Today FM ‘The Last Word’ – 14 years living with Pulmonary Hypertension. Karen is also joined by Prof Sean Gaine, Head of the National Pulmonary Hypertension Unit as they take Matt through the real life issues and huge challenges […]
Read Full Article14th May 19
New Home Exercise Program for PH patients
A Meath research student has designed a ground-breaking home based exercise rehab programme for Pulmonary Hypertension (PH) patients which will be the first of its kind in Europe. Ciara McCormack, a Clinical Exercise Physiologist and PhD researcher in DCU who specialises in chronic illness exercise rehabilitation, has just returned home from Berlin where her protocol […]
Read Full Article16th Apr 19
PH-Human – a new resource on PH
Actelion’s patient support website www.PH-Human.com is now live! The website includes: • The PH Human eBook – a resource to help explain what PAH is • Careers and hobbies page – including inspirational stories and career advice • Self-management series – podcasts and reports on topics such as intimacy and health literacy You can visit […]
Read Full Article26th Feb 19
PHéileacán Newsletter 2019
2018 was another busy year for the Pulmonary Hypertension Association Ireland and the 2019 PHéileacán Newsletter provides in-depth coverage of the activities undertaken to raise awareness of PH and support the people who are so severely impacted by this rare disease. We soared to one of the highest points on earth when one of our […]
Read Full Article5th Feb 19
PHéileacán – 2018 Newsletter
From Haulbowline to Patrick Street to Cobh Leisure Centre – Cork, from patient & family support meetings to the English Channel to Nice and Nuremberg, from the National Unit at the Mater Hospital to Dáil Éireann it’s been a PHenomenal year for PHA Ireland’s members and their supporters. If you don’t know what the Association has […]
Read Full Article17th Mar 18
PHA Ireland at Dáil Éireann
13th February 2018 was a very important and valuable day at Oireachtas Éireann, Ireland’s parliament, for PHA Ireland. A delegation of medical staff from the National Pulmonary Hypertension Unit, Mater Hospital, and members of PHA Ireland (Patients and Families members) attended and we are immensely grateful for all those who gave of their time to […]
Read Full Article18th Feb 18
Schoolmates reunite – Sonia O’Sullivan supports PH awareness
On Monday 6th November two schoolmates from the 1980’s reunited at Cobh Leisure Centre in Cork in the cause of PH awareness. One, Sonia O’Sullivan, among Ireland’s foremost sporting personalities – an Olympian and a World Champion who battled her way to the top of her discipline – and Christine Coakley who battles every day […]
Read Full Article9th Nov 17
Sonia O’Sullivan supports PH Awareness
Two girls who attended Cobh Community College in Co Cork in the 1980s will meet again on Monday 6th November in the Coral Leisure Centre in Cobh at 2pm. Both have had very different lives. One girl Sonia, became a world champion and an Olympian and the other girl Christine, was unfortunate to develop an […]
Read Full Article4th Nov 17
PH Awareness the winner as PHA Ireland comes 1st!
We’re delighted to report that at the PHA European AGM in Barcelona yesterday evening, PHA Ireland have won 1st prize for the best PH Awareness event for 2017. This of course was for the memorable and awe inspiring efforts of Irish Naval Service 40th Potential NCO’s Class who adopted us as their chosen charity for […]
Read Full Article20th Sep 17
UCD lecture on Pulmonary Hypertension
As part of our continuing awareness programme – Dr Brian McCullagh presented a lecture to the 4th Year Medical Students in UCD today. We are most grateful to Karen Doherty of the Pulmonary Hypertension Association who attended the presentation and facilitated a question & answer session. Our sincere thanks to Karen for her fabulous contribution […]
Read Full Article15th May 17
Cork lecture on Pulmonary Hypertension
Please note the following lecture will be delivered to members of the Navy in the base in Haulbowline, Co Cork. Association members and guests are invited to this lecture and a visit to the Base will be conducted (numbers limited to 50 so please advise by email to pha@mater.ie if you intend going to Cork […]
Read Full Article15th May 17
World Pulmonary Hypertension Day 2017
In order to mark World PH Day 2017 the Pulmonary Hypertension Association Ireland issued the following press release: Pulmonary Hypertension – A devastating disease Most of us take breathing for granted. Persons living with Pulmonary Hypertension (PH) do not. PH is caused by many different conditions but can occasionally occur for no known reason with […]
Read Full Article4th May 17
