The 2018 International Pulmonary Hypertension Conference & Scientific Sessions took place in Orlando, Florida USA on June 28th to July 1st. Titled ‘Phinding your hope’ it consisted of many breakout sessions and workshops. Regina Prenderville of PHA Ireland attended as one of the delegates and you can download her comprehensive and informative notes of the conference at […]
We’d like to remind everybody that our next Support Group Meeting is in the Silver Springs Hotel Cork on Monday next – 16th July at 12 noon in Harbour Suite 6 – looking forward to seeing all the attendees there.
We want to thank all our fabulous guest speakers, group facilitators and of course our very important patient and family participants that made the 2018 Patient & Family support meeting such a success last Saturday 28th April at Crowne Plaza Dublin – Blanchardstown. We hope everybody who attended found it engaging, informative and supportive. Please […]
The 2018 Annual Patient and Family Meeting will take place on Saturday April 28th at the Crowne Plaza Hotel, Blanchardstown commencing at 930am. We have a wide range of expert speakers and interactive workshops for participants. Please download the full programme at this link to find out how to register and the details of the […]
From Haulbowline to Patrick Street to Cobh Leisure Centre – Cork, from patient & family support meetings to the English Channel to Nice and Nuremberg, from the National Unit at the Mater Hospital to Dáil Éireann it’s been a PHenomenal year for PHA Ireland’s members and their supporters. If you don’t know what the Association has […]
13th February 2018 was a very important and valuable day at Oireachtas Éireann, Ireland’s parliament, for PHA Ireland. A delegation of medical staff from the National Pulmonary Hypertension Unit, Mater Hospital, and members of PHA Ireland (Patients and Families members) attended and we are immensely grateful for all those who gave of their time to […]
PHA Europe’s Official Journal – Mariposa Journal is now available for download www.phaeurope.org/wp-content/uploads/Mariposa-winter-n.-19_web.pdf. The journal highlights the numerous projects and activities the organisation has successfully carried out in the course of the year to advance the cause of pulmonary hypertension (PH) patients in Europe and the accomplishments of the member associations, who have been incredibly active […]
Via Pulmonary Hypertension Association Europe and the European Patients Forum (EPF) the annual opportunity to train our young people in patient advocacy comes around again. Advocacy is about defending patients’ rights: • Right to access treatment • Right to have affordable medication • Right to have good quality healthcare • Right to equality and equity The defense […]
2018 Rare Disease Day is this 28th February. Rare Disease Day preparations are fully underway and we are one step closer with the release of the official poster for 2018 (image above). The poster reveals the social media campaign for 2018 #ShowYourRare where you can show your support for people living with a rare disease. Meet Yara, […]
A special tweet chat using the hashtag #YoungWithPAH is happening today at 1730 Central European time – 1630 Irish time to focus on the issues and needs of young people with PAH. An expert panel of young people and clinicians will be participating.