Pulmonary Hypertension Unit

2019 AGM

PHA Ireland’s 2019 AGM will take place on Saturday, 7th September at the Crowne Plaza Hotel Blanchardstown, Dublin 15. As with previous years we are expecting a large turn out and the programme for the day includes a host of expert speakers with informative talks and interactive workshops. To register for the event you can […]

PH Webinar

INVITATION to join… Webinar: Intimacy, family planning and PH – a conversation with my partner and my health care team? Four Health Communications on behalf of Actelion are looking for members of our patient group interested in attending the first episode in this year’s self-management webinar series, which invites those living with PH to join […]

‘My heart is getting very tired – I need a transplant’

Karen Doherty, who has Pulmonary Hypertension for the last 14 years, shares her story with the Irish Independent’s Health & Wellbeing issue on the 24th June 2019. In a moving and compelling article Karen describes the enormous impact the disease has on the sufferer and her family and speaks about her future. The article can […]

14 Years Living with Pulmonary Hypertension

Compelling, emotional and thought provoking interview by Karen Doherty of PHA Ireland with Matt Cooper on Today FM ‘The Last Word’ – 14 years living with Pulmonary Hypertension. Karen is also joined by Prof Sean Gaine, Head of the National Pulmonary Hypertension Unit as they take Matt through the real life issues and huge challenges […]

New Home Exercise Program for PH patients

A Meath research student has designed a ground-breaking home based exercise rehab programme for Pulmonary Hypertension (PH) patients which will be the first of its kind in Europe. Ciara McCormack, a Clinical Exercise Physiologist and PhD researcher in DCU who specialises in chronic illness exercise rehabilitation, has just returned home from Berlin where her protocol […]

PH-Human – a new resource on PH

Actelion’s patient support website www.PH-Human.com is now live! The website includes: • The PH Human eBook – a resource to help explain what PAH is • Careers and hobbies page – including inspirational stories and career advice • Self-management series – podcasts and reports on topics such as intimacy and health literacy You can visit […]

2019 Rare Disease Day

Next Thursday 28th February is 2019 Rare Disease day. The focus of the day is to highlight the plight and challenges of people who suffer from rare disease, By coming together to raise awareness the ‘few’ hope to become the ‘many’ in terms of the weight of advocacy that they can bring to bear, highlighting […]

PHéileacán Newsletter 2019

2018 was another busy year for the Pulmonary Hypertension Association Ireland and the 2019 PHéileacán Newsletter provides in-depth coverage of the activities undertaken to raise awareness of PH and support the people who are so severely impacted by this rare disease. We soared to one of the highest points on earth when one of our […]

Irish Water Cheque Presentation

We’d like to say a very big thank you to the staff of Irish Water who, as we previously reported, managed to collect €750 for PHA Ireland in a 5K run recently. We are very grateful for their generosity of time and effort. Pictured above  is Regina Prenderville of PHA Ireland (centre) with Ciaran O […]

Team Phenomenal Hope UK & Ireland

We want to offer our congratulations and gratitude to all who participated in the 3 day endurance cycle from Sheffield to London marking PH Awareness week (22nd to 28th October). PHA Ireland was ably represented by Prof. Sean Gaine (pictured 5th from left and inset) who joined UK colleagues from different medical disciplines related to […]