Pulmonary Hypertension Unit

Mountjoy Staff Fundraiser for PHA Ireland – Update

PHA Ireland have issued the following Press release in advance of Monday’s (9th September) static cycle fundraiser in aid of PHA Ireland. After Breath taking match – the Dubs do it all again for Charity Most of us take breathing for granted. Persons living with Pulmonary Hypertension (PH) do not – for them breathing is […]

 

Mountjoy Prison Staff support PH Awareness

The Irish Prison Service’s vision is ‘A safer community through excellence in a prison service built on respect for human dignity’ with an associated set of values including Teamwork, Integrity, Potential, Safety & Support. Next Monday 9th September, staff from Mountjoy Prison are bringing this set of professional vision and values to bear in order […]

 

2019 AGM

PHA Ireland’s 2019 AGM will take place on Saturday, 7th September at the Crowne Plaza Hotel Blanchardstown, Dublin 15. As with previous years we are expecting a large turn out and the programme for the day includes a host of expert speakers with informative talks and interactive workshops. To register for the event you can […]

 

PH Webinar

INVITATION to join… Webinar: Intimacy, family planning and PH – a conversation with my partner and my health care team? Four Health Communications on behalf of Actelion are looking for members of our patient group interested in attending the first episode in this year’s self-management webinar series, which invites those living with PH to join […]

 

‘My heart is getting very tired – I need a transplant’

Karen Doherty, who has Pulmonary Hypertension for the last 14 years, shares her story with the Irish Independent’s Health & Wellbeing issue on the 24th June 2019. In a moving and compelling article Karen describes the enormous impact the disease has on the sufferer and her family and speaks about her future. The article can […]

 

14 Years Living with Pulmonary Hypertension

Compelling, emotional and thought provoking interview by Karen Doherty of PHA Ireland with Matt Cooper on Today FM ‘The Last Word’ – 14 years living with Pulmonary Hypertension. Karen is also joined by Prof Sean Gaine, Head of the National Pulmonary Hypertension Unit as they take Matt through the real life issues and huge challenges […]

 

New Home Exercise Program for PH patients

A Meath research student has designed a ground-breaking home based exercise rehab programme for Pulmonary Hypertension (PH) patients which will be the first of its kind in Europe. Ciara McCormack, a Clinical Exercise Physiologist and PhD researcher in DCU who specialises in chronic illness exercise rehabilitation, has just returned home from Berlin where her protocol […]

 

PH-Human – a new resource on PH

Actelion’s patient support website www.PH-Human.com is now live! The website includes: • The PH Human eBook – a resource to help explain what PAH is • Careers and hobbies page – including inspirational stories and career advice • Self-management series – podcasts and reports on topics such as intimacy and health literacy You can visit […]

 

2019 Rare Disease Day

Next Thursday 28th February is 2019 Rare Disease day. The focus of the day is to highlight the plight and challenges of people who suffer from rare disease, By coming together to raise awareness the ‘few’ hope to become the ‘many’ in terms of the weight of advocacy that they can bring to bear, highlighting […]

 

PHéileacán Newsletter 2019

2018 was another busy year for the Pulmonary Hypertension Association Ireland and the 2019 PHéileacán Newsletter provides in-depth coverage of the activities undertaken to raise awareness of PH and support the people who are so severely impacted by this rare disease. We soared to one of the highest points on earth when one of our […]

 

Irish Water Cheque Presentation

We’d like to say a very big thank you to the staff of Irish Water who, as we previously reported, managed to collect €750 for PHA Ireland in a 5K run recently. We are very grateful for their generosity of time and effort. Pictured above  is Regina Prenderville of PHA Ireland (centre) with Ciaran O […]

 

Team Phenomenal Hope UK & Ireland

We want to offer our congratulations and gratitude to all who participated in the 3 day endurance cycle from Sheffield to London marking PH Awareness week (22nd to 28th October). PHA Ireland was ably represented by Prof. Sean Gaine (pictured 5th from left and inset) who joined UK colleagues from different medical disciplines related to […]

 

Irish Water Staff 5K Run

We’d like to offer a massive thank you to the staff of Irish Water who took the opportunity of a 5K run in Fairview Park to support PH Awareness in a particularly timely fashion given it was PH Awareness Week (22nd to 28th October). You can see from the attached photos they addressed the run […]

 

Tallaght Athletics Club support PHA Ireland

On a beautiful afternoon in Dublin – the Tallaght Athletics Club ran a 5K race in support of one of our patients – Kathy Rooney. Kathy was delighted to be able to participate in part of the walk. The event was covered extensively by the local radio / print media. This was a real fun […]

 

Cup Finalists Cobh Ramblers support PHA Ireland

It takes character, hard work, skill and preparation to win a semi-final as underdogs and make it to the first senior national cup final in a club’s history. This is just what Cobh Ramblers FC achieved on Monday afternoon against Dundalk at St. Colman’s Park. Perhaps what displays the team’s character so vividly is that […]

 

The rising cost of breathing

Most of us take breathing for granted. Persons living with Pulmonary Hypertension (PH) do not. In an effort to raise awareness of this devastating disease, Cobh Ramblers have agreed to wear PH T-shirts prior to their epic encounter against Dundalk on Monday evening, 6th August at 5.00 pm in St Coleman’s Park. The team also want […]

 

PHinding your hope

The 2018 International Pulmonary Hypertension Conference & Scientific Sessions took place in Orlando, Florida USA on June 28th to July 1st. Titled ‘Phinding your hope’ it consisted of many breakout sessions and workshops. Regina Prenderville of PHA Ireland attended as one of the delegates and you can download  her comprehensive and informative notes of the conference at […]

 

Support Group Meeting – Cork

We’d like to remind everybody that our next Support Group Meeting is in the Silver Springs Hotel Cork on Monday next – 16th July at 12 noon in Harbour Suite 6 – looking forward to seeing all the attendees there.

 

Great Day at 2018 Patient and Family Annual Meeting

We want to thank all our fabulous guest speakers, group facilitators and of course our very important patient and family participants that made the 2018 Patient & Family support meeting such a success last Saturday  28th April at Crowne Plaza Dublin – Blanchardstown. We hope everybody who attended found it engaging, informative and supportive. Please […]

 

2018 Annual Patient and Family Meeting

The 2018 Annual Patient and Family Meeting will take place on Saturday April 28th at the Crowne Plaza Hotel, Blanchardstown commencing at 930am. We have a wide range of expert speakers and interactive workshops for participants. Please download the full programme at this link to find out how to register and the details of the […]