Pulmonary Hypertension Unit

PH Awareness the winner as PHA Ireland comes 1st!

We’re delighted to report that at the PHA European AGM in Barcelona yesterday evening, PHA Ireland have won 1st prize for the best PH Awareness event for 2017. This of course was for the memorable and awe inspiring efforts of Irish Naval Service 40th Potential NCO’s Class who adopted us as their chosen charity for […]

 

Clinical Nurse Vacancy PH (CNM2/CNS)

There is a job opportunity in Eccles Research & Innovation Ltd (ERIL) based in CVRRE Directorate Mater Misericordiae University Hospital. 1 Year Fixed Term CNM2/CNS post in Pulmonary Hypertension full time, 39 hour week, Monday to Friday. Pulmonary Hypertension will require travailing to other hospitals for outpatient clinics with paid expenses. Informal enquiries for the […]

 

Gunboat Diplomacy in support of PH Awareness 2017

This week it’s time to bring the big gun(s) out in support of Pulmonary Hypertension Awareness and the Association. The 40th Potential NCOs’ class of the Irish Naval Service are preparing for the next phase of their career patrolling and protecting our shoreline, mounting search and rescue at home and abroad and many other humanitarian and operational […]

 

Irish Naval Service ‘ROW’ in behind PH Awareness 2017

The Irish Naval Service makes the news on a regular basis particularly with their humanitarian duties in the Mediterranean and their critical duties along the Irish coastline. This July we’re hoping that the ‘40th Potential NCOs Course’ will be making news on our behalf in support of Pulmonary Hypertension Awareness. This will be our primary […]

 

UCD lecture on Pulmonary Hypertension

As part of our continuing awareness programme – Dr Brian McCullagh presented a lecture to the 4th Year Medical Students in UCD today. We are most grateful to Karen Doherty of the Pulmonary Hypertension Association who attended the presentation and facilitated a question & answer session. Our sincere thanks to Karen for her fabulous contribution […]

 

Cork lecture on Pulmonary Hypertension

Please note the following lecture will be delivered to members of the Navy in the base in Haulbowline, Co Cork.  Association members and guests are invited to this lecture and a visit to the Base will be conducted (numbers limited to 50 so please advise by email to pha@mater.ie if you intend going to Cork […]

 

World Pulmonary Hypertension Day 2017

In order to mark World PH Day 2017 the Pulmonary Hypertension Association Ireland issued the following press release: Pulmonary Hypertension – A devastating disease Most of us take breathing for granted. Persons living with Pulmonary Hypertension (PH) do not. PH is caused by many different conditions but can occasionally occur for no known reason with […]

 

Minister attends 2017 Patient & Family Meeting

We are very grateful to Finian McGrath, Minister for Disability issues, for attending our 2017 Patients & Families meeting. Minister McGrath tweeted after the event “Great morning with Prof. Sean Gaine and @pha_ireland.. Fantastic people who need support”. In response the Association stated “PH Association so grateful to Minister McGrath for his compassion, honesty & […]

 

Annual Patient & Family Meeting 2017

The 2017 Annual Patient & Family Meeting will be held in the Crowne Plaza Hotel this Saturday 22nd April. You can download the Programme for the day by clicking on this link.    

 

#TimeMatters update

PHA Europe launched a campaign in late 2016 called #TimeMatters to raise awareness for the importance of the time element in the diagnosis and treatment of patients with PH. The aim is to encourage discussions and debate across the PH community in Europe, in particular through social media, on the different aspects of time, in order to […]

 

PH Support Group Meeting

The next PH support Group Meeting will take place at 11am on Monday 13th March 2017 in the Crowne Plaza Hotel, Blanchardstown Centre, Blanchardstown D15. The meeting will take place in Meeting Room 1 on the 1st floor.

 

February 2017 Updates

PH Newsletter: In our last Newsletter we invited members to come up with a name for our PHA News. Since PH UK name their Newsletter Emphasis and PH Europe produce the Mariposa News (Mariposa is the Spanish for Butterfly) – we thought it would be appropriate to have a specific name for our Newsletter too. […]

 

Summer Training for Young Patient Advocates

FIRST Summer Training for Young Patient Advocates – Vienna – July 2017 We received the following information from PHA Europe about a unique and exciting opportunity for young people with an interest in pulmonary hypertension to learn about advocacy. ‘We have a unique opportunity to start preparing future PH fighters in an organised way.  The […]

 

Dying to Breathe

This promotional video from PHA Europe seeks to highlight how Pulmonary Hypertension can affect anyone, at any time. This short first-person account of being recently diagnosed shows how difficult everyday life with PH can be and how important it is to raise awareness of the disease. View the full video at this link,

 

‘Time Matters in PH’ Campaign

Our colleague Hall Skaara in Norway wrote to advise of the following: “I have now posted the first Time Matters video on PHA Europe’s Facebook page. The video comes from Serbia and is an interview of 19 year old Andjela. (If you have not seen it yet, please visit PHA Europe’s Facebook page and have […]

 

Advocacy PHact or PHiction?

The following article highlights the role of advocacy in the US in bringing about awareness and funding for research into the treatment of Pulmonary Hypertension. Test Your Knowledge of PH Advocacy December 27, 2016 By Katie Kroner, PHA Senior Director, Advocacy and Treatment Access As the Pulmonary Hypertension Association (PHA) celebrates its 25th anniversary in […]

 

Dublin Support Group Meeting January 2017

The first Dublin Support Group Meeting of 2017 will be on Monday 23rd January at 11 am in the Crowne Plaza Hotel, Blanchardstown (this had initially been planned for 30th Jan).

 

PHA Ireland Newsletter 2016

The 2016 Newsletter can be downloaded at the link below. As the cost of professionally designed & printed booklets is very expensive, this time we are producing an in house version. The opinion of our readers is very important to us – so please let us know what you think.  

 

BePhenomenal.com new website

November is Pulmonary Hypertension Awareness Month in the US and, in recognition, SteadyMed has announced the launch of its new website, BePHenomenal.com, dedicated to educating people with pulmonary hypertension (PH) so as to empower them to live the healthiest and most PHenomenal lives possible. BePHenomenal.com includes expert lifestyle information tailored for people with PH, such […]

 

Irish Examiner Article on Pulmonary Hypertension

In an article in the Irish Examiner, Lisa Salmon reports on the difficulties of diagnosing PH  and the need for greater PH awareness. Lisa writes “IT’S easy to dismiss a condition no one really talks about as no big deal. But in the case of pulmonary hypertension (PH), it really is a big deal — […]