Pulmonary Hypertension Unit

Great Day at 2018 Patient and Family Annual Meeting

We want to thank all our fabulous guest speakers, group facilitators and of course our very important patient and family participants that made the 2018 Patient & Family support meeting such a success last Saturday  28th April at Crowne Plaza Dublin – Blanchardstown. We hope everybody who attended found it engaging, informative and supportive. Please […]

 

2018 Annual Patient and Family Meeting

The 2018 Annual Patient and Family Meeting will take place on Saturday April 28th at the Crowne Plaza Hotel, Blanchardstown commencing at 930am. We have a wide range of expert speakers and interactive workshops for participants. Please download the full programme at this link to find out how to register and the details of the […]

 

PHéileacán – 2018 Newsletter

From Haulbowline to Patrick Street to Cobh Leisure  Centre – Cork, from patient & family support meetings to the English Channel to Nice and Nuremberg, from the National Unit at the Mater Hospital to Dáil Éireann  it’s been a PHenomenal year for PHA Ireland’s members and their supporters. If you don’t know what the Association has […]

 

PHA Ireland at Dáil Éireann

13th February 2018 was a very important and valuable day at Oireachtas Éireann, Ireland’s parliament, for PHA Ireland. A delegation of  medical staff from the National Pulmonary Hypertension Unit, Mater Hospital, and members of PHA Ireland (Patients and Families members) attended and we are immensely grateful for all those who gave of their time to […]

 

Mariposa Journal Winter 2017/18

PHA Europe’s Official Journal – Mariposa Journal is now available for download www.phaeurope.org/wp-content/uploads/Mariposa-winter-n.-19_web.pdf. The journal highlights the numerous projects and activities the organisation has successfully carried out in the course of the year to advance the cause of pulmonary hypertension (PH) patients in Europe and the accomplishments of the member associations, who have been incredibly active […]

 

2018 Young People Patient Advocacy

Via Pulmonary Hypertension Association Europe and the European Patients Forum (EPF) the annual opportunity to train our young people in patient advocacy comes around again. Advocacy is about defending patients’ rights: • Right to access treatment • Right to have affordable medication • Right to have good quality healthcare • Right to equality and equity The defense […]

 

2018 Rare Disease Day

2018 Rare Disease Day is this 28th February. Rare Disease Day preparations are fully underway and we are one step closer with the release of the official poster for 2018 (image above). The poster reveals the social media campaign for 2018 #ShowYourRare where you can show your support for people living with a rare disease. Meet Yara, […]

 

Tweet Chat #YoungWithPAH

A special tweet chat using the hashtag #YoungWithPAH is happening today at 1730 Central European time – 1630 Irish time to focus on the issues and needs of young people with PAH. An expert panel of young people and clinicians will be participating.

 

Schoolmates reunite – Sonia O’Sullivan supports PH awareness

On Monday 6th November two schoolmates from the 1980’s reunited at Cobh Leisure Centre in Cork in the cause of PH awareness. One, Sonia O’Sullivan, among Ireland’s foremost sporting personalities – an Olympian and a World Champion who battled her way to the top of her discipline – and Christine Coakley who battles every day […]

 

Sonia O’Sullivan supports PH Awareness

Two girls who attended Cobh Community College in Co Cork in the 1980s will meet again on Monday 6th November in the Coral Leisure Centre in Cobh at 2pm. Both have had very different lives. One girl Sonia, became a world champion and an Olympian and the other girl Christine, was unfortunate to develop an […]

 

PH Awareness the winner as PHA Ireland comes 1st!

We’re delighted to report that at the PHA European AGM in Barcelona yesterday evening, PHA Ireland have won 1st prize for the best PH Awareness event for 2017. This of course was for the memorable and awe inspiring efforts of Irish Naval Service 40th Potential NCO’s Class who adopted us as their chosen charity for […]

 

Clinical Nurse Vacancy PH (CNM2/CNS)

There is a job opportunity in Eccles Research & Innovation Ltd (ERIL) based in CVRRE Directorate Mater Misericordiae University Hospital. 1 Year Fixed Term CNM2/CNS post in Pulmonary Hypertension full time, 39 hour week, Monday to Friday. Pulmonary Hypertension will require travailing to other hospitals for outpatient clinics with paid expenses. Informal enquiries for the […]

 

Gunboat Diplomacy in support of PH Awareness 2017

This week it’s time to bring the big gun(s) out in support of Pulmonary Hypertension Awareness and the Association. The 40th Potential NCOs’ class of the Irish Naval Service are preparing for the next phase of their career patrolling and protecting our shoreline, mounting search and rescue at home and abroad and many other humanitarian and operational […]

 

Irish Naval Service ‘ROW’ in behind PH Awareness 2017

The Irish Naval Service makes the news on a regular basis particularly with their humanitarian duties in the Mediterranean and their critical duties along the Irish coastline. This July we’re hoping that the ‘40th Potential NCOs Course’ will be making news on our behalf in support of Pulmonary Hypertension Awareness. This will be our primary […]

 

UCD lecture on Pulmonary Hypertension

As part of our continuing awareness programme – Dr Brian McCullagh presented a lecture to the 4th Year Medical Students in UCD today. We are most grateful to Karen Doherty of the Pulmonary Hypertension Association who attended the presentation and facilitated a question & answer session. Our sincere thanks to Karen for her fabulous contribution […]

 

Cork lecture on Pulmonary Hypertension

Please note the following lecture will be delivered to members of the Navy in the base in Haulbowline, Co Cork.  Association members and guests are invited to this lecture and a visit to the Base will be conducted (numbers limited to 50 so please advise by email to pha@mater.ie if you intend going to Cork […]

 

World Pulmonary Hypertension Day 2017

In order to mark World PH Day 2017 the Pulmonary Hypertension Association Ireland issued the following press release: Pulmonary Hypertension – A devastating disease Most of us take breathing for granted. Persons living with Pulmonary Hypertension (PH) do not. PH is caused by many different conditions but can occasionally occur for no known reason with […]

 

Minister attends 2017 Patient & Family Meeting

We are very grateful to Finian McGrath, Minister for Disability issues, for attending our 2017 Patients & Families meeting. Minister McGrath tweeted after the event “Great morning with Prof. Sean Gaine and @pha_ireland.. Fantastic people who need support”. In response the Association stated “PH Association so grateful to Minister McGrath for his compassion, honesty & […]

 

Annual Patient & Family Meeting 2017

The 2017 Annual Patient & Family Meeting will be held in the Crowne Plaza Hotel this Saturday 22nd April. You can download the Programme for the day by clicking on this link.    

 

#TimeMatters update

PHA Europe launched a campaign in late 2016 called #TimeMatters to raise awareness for the importance of the time element in the diagnosis and treatment of patients with PH. The aim is to encourage discussions and debate across the PH community in Europe, in particular through social media, on the different aspects of time, in order to […]